frustrated, but happy = D

I am F R U S T R A T E D!
I somehow erased everything I had just typed about the journey we have taken with Jensyn since the summer of 2008. It was amazingly draining to write and I do not have the oomph to re-do it right now.

I am happy to share that Jensyn is doing better... we will increase the med again on the 29th, and we are praying that it should be the perfect dose to help her stay balanced. Right now the dose she is taking helps her maintain well until about 5pm before things start to unravel. This journey has involved a Psychiatric Nurse Practioner, Peditaric Neurologist, and Pediatric Endocrinologist...along with tons of labwork, and EEG and an MRI. Everything was going well until the first meds caused almost 30 pounds of weight gain that was not halting. Hence, the need to slowly eliminate the weight gain causing med and hoping that it did not need to be replaced. It turns out that Jensyn did need a replacement med and now we are in the phase of finding the right dose to help her live successfully.

Along with Jensyn doing better... she has now lost about 2 pounds :D :D
There is a possibility that her body will slowly lose the medication related weight gain and she will have control of her body back. She deserves to
feel comfortable in her own skin.
I am excited for her to dance like she used to! Ooohh... I LOVE my Jensyn!